DARYA
NADINE Chappy, my sister's co-worker, & Melanie Hollis
Their children:
Caleb (biological,14); Lydia (biological, 11); Natalie (adopted from Russia and has Fetal Alchohol Syndrome, 11); Hope (biological, has Down Syndrome); Charlie (adopted, 1 year old, and has Down Syndrome)
The Hollis Family is nothing short of AMAZING!! Take a look at their blog and join in my amazement. They have a passion to adopt the kids that aren't "perfect" in most of the world's eyes, particularly those with Down Syndrome.
Pay special attention to this post, but grab a tissue first. They are currently trying to raise $20k to adopt 2 more Down Syndrome kiddos from Reece's Rainbow. These kids will be transferred out of their current orphanage to another at the age of 4 where they will be left in a crib with only enough food to survive. Many do not!
If you'd like to join in on their fundraising efforts, please let me know. I will give you their address.
Hannah now has to wear SMO's. To hide the braces a bit, I've decorated some cuff socks for her to roll down over them. They are easy to do, once you realize that you need to stretch the sock while sewing on the lace or else you kiddo can't get them on her feet. LOL!With everything going on with Hannah and Austin being in the "terrible twos", I'm a bit behind on life in generally. This is why I rarely post anymore.
Recently, EGF has received two requests which has prompted me a "needs list." If you could stick the following items in your line-up for crafting, I would greatly appreciated it!
We have several hospitals that only want the tiny sets as they have plenty of donations for the larger angels. Last week I received a request for just that from the hospital where Emma passed away. Annually I send something but I have never sent a lot since Emma was so beautifully dressed. They've now requested that they be on our regular list.
I've also received a request from a hospital in Ohio that services a predominately Amish population. Thus, solid white is requested. I have sent all of the solid white sets that I have. The bereavement coordinator sent me a link to some photos too. They are beautifully done!
As always, thanks a MILLION for all that you do for the families!!
Becky, a very good friend of mine, recently approached me about doing a Homemade Gourmet fundraiser in Hannah's Honor. She has generously offered to donate ALL of her profits to FARA, the Friedreich's Ataxia Research Alliance.
Please join us in raising money to find a cure for FA!!The online fundraiser will end on Sept 22nd. Please visit this site to place your order. http://homemadegourmet.eventuity.com/e/25311
Big Thanks!!
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Lots of exciting advancements are being made. We need the money to push the research through FDA approval. One of the most exciting avenues being pursued is the HDAC Inhibitor. It is showing great promise in the animal models and blood from FA patients. The HDAC Inhibitor introduces the missing frataxin back into the gene. It has the potential of not only stopping the progression of FA, but reversing the damage already done.
