Fabric

Jason's grandmother used to quilt A LOT. Her health has recently taken a turn for the worst and Jason's aunt that lives about an hour from us cleaned out Nanny's fabric stash. I have now inherited the above. If you see any of if that you could use to make EGF stuff, please let me know. I'll GLADLY share.

Here are a few quilts that Aunt Grayce made for EGF out of some of Nanny's fabric, and some that she already had. Aunt Grayce has an AWESOME sewing room set up in her basement with a wall full of color-coated fabric.

Pillowcase Dresses

My love of sewing came from my grandmother. A couple of months ago, my Mom found a set of beautiful old pillowcases in the attic. I told her that I had some Nana's Heirloom Soak that I bought at a specialty fabric store in Houston when I was smocking a lot. It did a GREAT job at cleaning the old pillowcases.

....and my Grandmother did a GREAT job of making her great-granddaughters pillowcase dresses!

4th Annual Remembering Emma Grace Donation Drive

Obviously, life took a big turn several weeks ago with Hannah's diagnosis of Friedreich's Ataxia. Thus, I'm late kicking off the annual donation drive. I've received several inquiries about whether I would continue EGF. The answer is YES.....as long as I can. I briefly considered whether I could handle everything (and it may change as Hannah's disease progresses) but then I received 3 phone calls/emails for assistance in a couple days. So, I took it as a sign to keep on keeping on as long as possible.

4th Annual Remembering Emma Grace Donation Drive
Date: June 1 - August 15
Goal: 1187 items & $535 in cash donations

Items needed:


Handmade -

Bereavement gowns in all sizes. Boy gowns without "frills" are in high demand. If possible, a set that includes a blanket and hat is much appreciated.
Memory Boxes - This is a big request and I we only have one donor that makes them regularly.
Blankets, approx 24" x 24", in any baby color - I will match with gowns I already have on hand.

Purchased -

Disposable Cameras
Journals
Votive Candles
Forget-Me-Not seed packets
Mesh baggies for locks of hair
Books on surviving the loss of a child
Mini photo frames
Hand/Foot mold kits
Plastic ziptop bags, gallon & larger - I have plenty of the quart sized baggies.
Postage
Print cartridge - HP Black #92; HP Color #93

As always, a monetary donation is very much appreciated. All donations are tax deductible and I will gladly provide you with a receipt.

To date Emmazing Grace has donated 2560 bereavement and NICU items. We have also helped 22 families with funeral expenses or the purchase of a cemetery monument for their precious angel.

Through all of your heartfelt and generous donations, Emmazing Grace has touched many lives. Thank you from the bottom of my heart for joining our little efforts!!

Just like last year, a prize drawing will be held at the completion of the donation drive.

Please feel free to contact me at info@emmazinggracefoundation.org if you have any questions!

Thanks a million!

Candy

Shopping Bag

One of my goals from Earth Day LAST YEAR (yikes!!!) was to make some reuseable shopping bags. I can't stand the plastic things. I used this pattern and some "vintage" fabric from my mom's stash. The only suggestion I have is to round the inner corners of the handles. I think it would make the bag stronger plus easier to overcast the raw edges. The bag turns out to be about the size of a regular plastic bag but I filled it with two 2-liters and 2 gatoraids and it seems to be strong enough.

Hannah's Site

I have created a Caringbridge Site to keep everyone updated on Hannah. I simply cannot keep up with updating things here, my fertility site, and Facebook. So....I'm going to keep a journal here.

Thanks again for all the support!! Precious Hannah has no idea what struggles she will soon face.

Thanks Everyone!

Just a quick and big THANK YOU to all that have called, emailed, and posted to me. Dr G said that he would try to clear an hour out of his schedule this week to talk with us further. We did not receive a call from him today. Here is a a link that has a pretty easy to understand explanation of FA. Some of you may wonder about Austin. He has a 1 in 4 chance of having it too. Without knowing, Jason and I are both carriers. Currently, since there is no known treatment at the advice of Dr G we are not going to test him.

It's Friedreich's Ataxia

Neuro just called and life just turned upside down.

LabCorp says....

neuro has the results now. Still no word from the med asst, though. Am wondering if she'll give me the info without the neuro being in the office today. Torture!

Here's what I know

Neurologist isn't in the office today, Athena rec'd the authorization form and released the results to LabCorp....BUT LabCorp doesn't have the results in their system yet. Med asst still won't return my call.